Tag: topical steroid withdrawal
-
Kelsie’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Kelsie Lorenz Age: 31 Work: Teacher. I had to go on medical leave Date of Withdrawal: April 29, 2020 What type(s) of steroids did you use? Topical only-elecon Are you on any other medication? No but went on Dupixent…
-
Katherine’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Katherine Spiech Age: 26 Work: Clinical Study Assistant at MAPS MPBC (was about to go to medical school but had to put that on pause when I got sick) Date of Withdrawal: 05/24/2021 What type(s) of steroids did you…
-
On the Way Down
At this moment, I am living in a déjà vu. A loading matrix. It hit me on a sunset bike ride this week. While making my first documentary, Preventable, I was crushed inside this suffocating capsule. I was heartbroken, homesick for a place that wasn’t actually home, fighting for my life, and wondering why I…
-
Cat’s T. S. W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Catarina Sams Age: 33 Work: Project Manager Date of Withdrawal: First in 2020, then got hospitalized with eczema herpeticum and given steroids. Now steroid free and actually completely medication free since January 2022 What type(s) of steroids did you…
-
Grace’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Grace Beeby Age: 31 Work: Practice Manager Date of Withdrawal: July 6th, 2020 What type(s) of steroids did you use? Hydrocortisone – both cream and ointment, Beta cream, Mometasone, Dermol (some others when I was younger but I can’t…
-
Leaning In
Narcissus, in greek mythology, is a god who falls in love with his reflection. Enthralled by his outer beauty, he sits by a bank of water and stares at his face in the water’s reflection, ignoring any hunger or thirst. He eventually dies right there, unable to meet his bodies needs because he was so…
-
From Across the Pond
Hello loves! From down under, to state side, we have finally made our last round — across the pond! When it comes to this last leg of the tour, funding is imperative. If I am not able to raise all of the funds needed, I may have to cut off part of the US/UK tour,…
-
In Remission
This word, remission, is highly associated with cancer patients. They get to ring a gong and celebrate the absence of their sickness. And after weeks, even months, of being tethered to chemo, hospital beds, and treatment schedules, they are thrust back into the world. Believe it or not, that is petrifying. When all you know…
-
From The States
Hello loves! From March to April, we get to see all of our Australian and New Zealand rockstars, but once June hits, we are on to North America! On this stretch of the documentary, we will be seeing more doctors/leaders than advocates (which is exciting!), and I can’t wait to finally meet some of these…