Tag: eczema
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Kelsie’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Kelsie Lorenz Age: 31 Work: Teacher. I had to go on medical leave Date of Withdrawal: April 29, 2020 What type(s) of steroids did you use? Topical only-elecon Are you on any other medication? No but went on Dupixent…
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Katherine’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Katherine Spiech Age: 26 Work: Clinical Study Assistant at MAPS MPBC (was about to go to medical school but had to put that on pause when I got sick) Date of Withdrawal: 05/24/2021 What type(s) of steroids did you…
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Cat’s T. S. W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Catarina Sams Age: 33 Work: Project Manager Date of Withdrawal: First in 2020, then got hospitalized with eczema herpeticum and given steroids. Now steroid free and actually completely medication free since January 2022 What type(s) of steroids did you…
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Grace’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Grace Beeby Age: 31 Work: Practice Manager Date of Withdrawal: July 6th, 2020 What type(s) of steroids did you use? Hydrocortisone – both cream and ointment, Beta cream, Mometasone, Dermol (some others when I was younger but I can’t…
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From Across the Pond
Hello loves! From down under, to state side, we have finally made our last round — across the pond! When it comes to this last leg of the tour, funding is imperative. If I am not able to raise all of the funds needed, I may have to cut off part of the US/UK tour,…
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In Remission
This word, remission, is highly associated with cancer patients. They get to ring a gong and celebrate the absence of their sickness. And after weeks, even months, of being tethered to chemo, hospital beds, and treatment schedules, they are thrust back into the world. Believe it or not, that is petrifying. When all you know…
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From The States
Hello loves! From March to April, we get to see all of our Australian and New Zealand rockstars, but once June hits, we are on to North America! On this stretch of the documentary, we will be seeing more doctors/leaders than advocates (which is exciting!), and I can’t wait to finally meet some of these…
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The Parting Glass
As I plan out every detail of this upcoming documentary, I can’t help but reminisce about my first trip around the world. There were moments, since the day I published my old Preventable website, where I could feel failure breathing down my neck. I wasn’t raising enough money. I was heartbroken from a sudden separation…
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Prisoner of War
I recently came across a piece of work that spoke about war heroes. Many were men who had been held captive and tortured for long periods of time. One such man was high-ranking naval officer, Jeremiah Denton. His plane went down over northern Vietnam, forcing himself to eject before it crashed. He and his co-pilot…