Tag: preventable
-
Breathing
I stumbled across a quote yesterday that said “I want somebody to love me.” I immediately thought about Josephine March from Little Women. It’s the scene where she is pacing in the attic of her childhood home, her mother watching. Upon learning that Laurie is accompanying her sister back home, Jo clings to her loneliness…
-
Through the Stones
I’ve been preparing, mentally, for this post. A part of me knew it was coming, but I kept putting it off because news of the future became elusive. Besides placing the documentary on my priority list, I realized I was doing it again — putting myself second. I dove head first into a project that…
-
On the Way Down
At this moment, I am living in a déjà vu. A loading matrix. It hit me on a sunset bike ride this week. While making my first documentary, Preventable, I was crushed inside this suffocating capsule. I was heartbroken, homesick for a place that wasn’t actually home, fighting for my life, and wondering why I…
-
From Across the Pond
Hello loves! From down under, to state side, we have finally made our last round — across the pond! When it comes to this last leg of the tour, funding is imperative. If I am not able to raise all of the funds needed, I may have to cut off part of the US/UK tour,…
-
From The States
Hello loves! From March to April, we get to see all of our Australian and New Zealand rockstars, but once June hits, we are on to North America! On this stretch of the documentary, we will be seeing more doctors/leaders than advocates (which is exciting!), and I can’t wait to finally meet some of these…
-
Jen’s T.S.W. Journey
We all may be walking beside each other, but our stories are never the same. Name: Jennifer Powers Age: 36 Work: Self employed/Coaching business, but business has suffered majorly due to TSW Date of Withdrawal: Dec 1, 2021 What type(s) of steroids did you use? Protopic, Elidel, Elicon, Prednisone, and many others (*did not specify…
-
Meet Beth
Date of withdrawal: July 19, 2020 Birthday: December 13, 1989 What is … your favorite Starburst flavor? The green one, whichever flavor that is! your favorite book? Behind Closed Doors, B. A. Paris (love a thriller) your favorite Robin Williams movie? Ms. Doubtfire,dear! your biggest weakness (not physical)? Not trusting my strength at times Your…
-
Censored Skin
At the beginning of October, I gave in and downloaded Tik Tok. I didn’t want another app that would essentially suck up my time, but it was Eczema Awareness Month, and I wanted to reach as many people as possible. Hence, my Tik Tok account went live. I had no idea what I was doing.…
-
Perfection is a Sickness
I always thought it was everyday people who perpetuated the need to have beautiful skin. To have it glow, be silky-smooth, and never have a blemish in sight. But maybe I am wrong. Maybe it starts inside a doctor’s office. Ever since being diagnosed with Topical Steroid Withdrawal almost eight years ago, it’s as if…
-
Meet Bri
Date of withdrawal: 1/25/15 Birthday: October 30, 1988 What is … your favorite Starburst flavor? Orange your favorite book? The Little Prince by Antoine de Saint-Exupéry your favorite Robin Williams movie? Mrs. Doubtfire your biggest weakness (not physical)? Imposter Syndrome Your biggest pet peeve? Not knocking before opening a door Would you rather … play…